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“Know Scleroderma” is the theme of the 2022 consciousness marketing campaign. All through the month of June, the Basis has posted movies and photographs of people affected by scleroderma on its Fb, Twitter, Instagram, and LinkedIn social media accounts. The theme highlights the Basis’s perception that to know scleroderma is to grasp the impression of a uncommon illness that’s life-threatening for a lot of and may trigger bodily disabilities and alter lives endlessly. A particular video shall be posted on social media on World Scleroderma Day to amplify the necessity for scleroderma analysis and funding, to spotlight the Basis’s assets for people affected by scleroderma, and to present voice to people affected by the illness. Featured within the video is recording artist Ashley Barron, who was recognized with localized scleroderma as a toddler and now serves because the Basis’s Celeb Ambassador.
The Nationwide Scleroderma Basis’s mission is to advance medical analysis, promote illness consciousness, and supply help and training to folks with scleroderma, their households and help networks. It is community of chapters and help teams present alternatives for people with scleroderma to attach with one another. Its annual Nationwide Scleroderma Convention is the preeminent scleroderma training occasion that gives entry to world famend scleroderma specialists and the most recent in details about symptom administration and scleroderma analysis. The 2022 convention is digital and takes place July 15, 16, and 17. To study extra, go to scleroderma.org/convention.
All are inspired to affix the scleroderma consciousness marketing campaign by sharing and reposting Basis content material on Fb, Twitter, LinkedIn, and Instagram. To study extra about World Scleroderma Day and Scleroderma Consciousness Month, go to www.scleroderma.org.
ABOUT SCLERODERMA
Scleroderma is a uncommon rheumatic illness that impacts connective tissue and the vascular system inflicting an overproduction of collagen (fibrosis) within the pores and skin (localized scleroderma), and the inner organs (systemic sclerosis), which could be life-threatening. Anybody can have scleroderma. The trigger will not be but recognized and there’s no remedy.
ABOUT NATIONAL SCLERODERMA FOUNDATION
The Nationwide Scleroderma Basis is a relentless pressure for individuals who have scleroderma because it advances medical analysis, promotes illness consciousness, and gives help and training to folks with scleroderma, their households and help networks. Its extremely regarded peer-reviewed analysis grant program goals to find the trigger, perceive the mechanisms, and overcome scleroderma endlessly. scleroderma.org
MEDIA CONTACT:
Steve Sookikian
[email protected]
(978) 624-1243
SOURCE Nationwide Scleroderma Basis
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